Well, last night Patricia was up all night with baby Micah. She thinks he may be feeling a little better because he cried for what she thought was from being hungry. He seems to have a little more energy and looks pretty good. He smiled and cooed with us today. He does still have the dumping (diarrhea) effect but it has decreased some. His total output today for a 12 hour period was around 365mL. He remains on the TPN and is still receiving IV fluid electrolyte replacements. His blood sugar is running a bit high, most likely from the Sandostatin, as that is one of the side effects of that medication. Mommy gave him his first bath since he was admitted. Mommy says he was "stinky." No word on any of the biopsies that were taken from his sigmoidoscopy. Tomorrow, his doctors are going to send special tests to California to check for an Autoimmune assay. His GI doctor is concerned that the "Slick Gut Syndrome" may have triggered an Autoimmune response called "Autoimmune Enteropathy." Please pray hard that he does not have this "autoimmune enteropathy" as that is far more complicated and a chronic (life time) condition. Aunt Kathy brought Josiah today for a visit. He and his mommy had fun playing together. Aunt Kathy has been such a blessing as she is helping greatly with Josiah and keeping our house running. We are continuously leaning on the Lord.
My name is Kim Eckert and my son was hospitalized with slick gut on Jan 25 2007 at 10 weeks of age. Jessica Moore gave me your contact info, and I would love to talk with you about your experience. I also kept a blog for my little one - www.babybrennaneckert.blogspot.com. Brennan is now almost 13 months and completely healthy. You are in my thoughts and prayers!
ReplyDeleteit was 2008 actually
ReplyDeleteThis picture of the boys is so sweet. You guys have such a beautiful family. We are praying!
ReplyDelete