Saturday, December 6, 2008
Micah's Admission to TC Thompsons with Slick Gut Syndrome
I just wanted to give everyone an update on little Micah's status. Micah has been admitted to TC Thompson for a rare disease process called "slick gut syndrome" also known as Intractable diarrhea in infancy. His illness was set off by the Milk protein allergy that he has and was exacerbated by a gastroenteritis he acquired. This affected his small intestine, which eroded the microvilli of the small intestine which are essential for absorption of intestinal secretions and nutrients and also caused his small bowel to become inflamed. This causes a dumping effect of the intestinal secretions which cause dehydration and mal-absorption of nutrients. Without intervention, babies with this disease process would die from dehydration and malnutrition. Micah currently has a central line placed for TPN and electrolyte replacements. He also received a unit of PRBCs for the anemia that has occurred due to this process. He has also been running fevers so he is on some antibiotics, good thing is that so far his cultures have come back negative. He unfortunately is still dumping up to 200mL per Kilo from his diarrhea. We were told to expect to be here for the next 4 weeks and if all goes well it will take up to 4 to 6 months for his small intestine to completely heal. We were also told to expect at some point for Micah to become bacterimic at some point due to the disruption of his small intestine that will allow bacteria to flourish. Kind of scary to know that sepsis is coming to town. Anyway, he still is maintaining at the same level and has not yet began to improve, although he looks better than the first day. I just want to say that I thank you all for your support and for being supportive of Patricia too. I just ask that you continue to pray for little Micah.
Subscribe to:
Post Comments (Atom)
Patricia, Juan and family. Kay and I are praying for you all and will continue to do so throught this illness. Wish we were there to be with you but know you have a wonderful supportive family network. We will be in town 12/11 to 12/17 so will see you then. Until then you know how to contact us. Love....Doyce and Kay
ReplyDeleteMike, Patricia and boys. Please know that you are in our prayers and all though separated by states GA/NJ we are here for you. Love your big lit' sis...MaRisol
ReplyDeletePatricia and Juan,
ReplyDeleteIm so sad for Micah and you all for what you are facing. Matt and I will be praying for him and for you all. You KNOW the GOD we serve, who is ABLE to do more than we imagine, even miracles! Wish I was in town to come visit you and be there. If we can do anything from KY, please let us know. Let us know your needs. We love you!!!!! Gina and Matt Rouse (Gina Recher from WPBC) :)
Christi and I are praying. Let us know if you need anything.
ReplyDeleteDear Patricia & Juan,
ReplyDeleteOnce when I was praying for Micah, I thought of him as "more than an overcomer," so that is what I pray for him. Also, that someday he will spread the Gospel.
Much love to you all,
Lisa Jones (MaryBeth's sister)
Dear Patricia & Juan,
ReplyDeleteWe have faith that the lord will be with you all through this difficult time. We have you in our prayers Micah.
Love & Blessings,
Rosangel & Lorenzo
Ruthie and Juan,
ReplyDeleteI just wanted to let you know that you and the boys are in my PRAYERS!! GOD WILL TAKE CARE OF THAT SWEET BABY!! I have been keeping in touch with Grandma and she has been keeping us ALL up to date with Little Micah. Let us know if there is anything we can do for y'all. Kiss that SWEET LITTLE BOY FOR HIS COUSINS' IN LOUISIANA!!!
WE LOVE YOU MUCH!!
KIM & FAMILY
My love & prayers go out to you both and your extended family at this time. So sorry to hear what you are going through but we know our God is able to carry us through our dark times and once again into sunlight of blessings. May you be able to soon rejoice in little Micah's progress.
ReplyDeleteSara Lambert (formerly Buckley) Auckland, NZ
You guys are in my thoughts and prayers! God has such a special plan for this little guy and I can't wait to see what He has in store for all of you. I can't wait to see him, and you too of course Patricia!
ReplyDeleteSee you soon!
Jen Douglas
This touches my heart. I pray for you and your family. I am only 18, but i have always been scared of having a child w health problems. I now look at it as a gift from god. Not everyone could handle the trials and troubles you go through. Thanks for the inspiration. I will follow you all the way through this. Just keep everything updated.
ReplyDeleteHi,
ReplyDeleteMy younger son seems to be going through the exact same thing. We have been in the hospital for about 2 months. He is home now but the Hickman's line is still with him.
We are really concerned for his future. Can you please tell us how your son is coping as of today.
Hopefully he is allright and living a healthy life.
Thank you very much indeed.
Gratefully,
S. S.
Hi,
ReplyDeleteMy younger son seems to be going through the exact same thing. We have been in the hospital for about 2 months. He is home now but the Hickman's line is still with him.
We are really concerned for his future. Can you please tell us how your son is coping as of today.
Hopefully he is allright and living a healthy life.
Thank you very much indeed.
Gratefully,
S. S.
Hi, The story you wrote 4 years ago is still helping people like me. My 3 weeks old baby have been diagnosed with the slick gut syndrome and is going through the same thing. I use Micah as a point of contact and claim my baby's healing too. God bless u.
ReplyDeleteMy 4 weeks old was diagnosed today with Slick Gut Syndrome. Me and my husband are horrified with this since they also have told us that our baby cannot eat until her intestines/bile resolves. It is very hard for parents to see their baby cry out because of hunger but cant do anything about it.
ReplyDeleteI want to know how your baby is now since this was blogged 4yrs ago. They're starting my baby with TPN and lipids today.
ReplyDeleteHi! I really need some help and ideas for my creative writing assignment. We have to mimic the Canterbury Tales by Chaucer. We have to have 5 diverse characters (so far I have a brunette young woman who is a musician from NJ) and they are going on a pilgrimage to NYC. They have to be diverse based on gender, class, race, and occupation and where they are coming from. Then they have to each tell a story. I am having a lot of problems being creative with them. I really have no idea where to start. I would really appreciate any ideas. Thanks!.
ReplyDelete