On the 3rd of February Micah had his follow up doctor visit with his GI doctor. The feeding tube that went into his nose was removed and he was placed on strict bottle feeds. Our doctor told us that it would be sick or swim. Either he would do well drinking strictly from the bottle or he would need his tube put back in. We thank God for how awesome Micah has done. He has had no trouble drinking from the bottle and he has been putting on weight. Micah continues to do well and he has even been on Pregestimil a milk that requires that his gut works harder to break down the milk. We are thoroughly enjoying him at home with a relatively normal life, although we are still very protective and cautious with him. His big brother absolutely loves him and always wants to watch tv and play with him. Thank you again for all your thoughts and prayers and for being with us during what was a very difficult time. Your support and concern meant a lot to our family. Saturday, March 14, 2009
Sink or Swim
On the 3rd of February Micah had his follow up doctor visit with his GI doctor. The feeding tube that went into his nose was removed and he was placed on strict bottle feeds. Our doctor told us that it would be sick or swim. Either he would do well drinking strictly from the bottle or he would need his tube put back in. We thank God for how awesome Micah has done. He has had no trouble drinking from the bottle and he has been putting on weight. Micah continues to do well and he has even been on Pregestimil a milk that requires that his gut works harder to break down the milk. We are thoroughly enjoying him at home with a relatively normal life, although we are still very protective and cautious with him. His big brother absolutely loves him and always wants to watch tv and play with him. Thank you again for all your thoughts and prayers and for being with us during what was a very difficult time. Your support and concern meant a lot to our family. 
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After looking over this whole profile, it's hard to believe the sick baby in the beginning is the same happy little toddler I see when he comes to visit. Praise be to God!
ReplyDeleteLisa Jones
I found your blog today when researching my own baby daughter's health problems. I cannot believe how similar our stories are! My name is Christie and my baby girl, Savannah was born March 23, 2007. We nearly lost her when she was almost 5 months old and she was admitted to our local children's hospital for a month. She, too was put on Neocate and used a nose tube for feeding, we had an in-home nurse, and Savannah had a central line and atrophied villi that caused severe malnutrition.
ReplyDeleteIn my daughter's case, though she saw many specialists, including an Infectious Disease doc (who also specializes in Autoimmune disorders, several GI docs, a genetics specialist who flew in from out of state, etc), we were never given a diagnosis. They still call my daughter the "mystery girl."
My daughter is now 2 years old and seems lightyears away from the very sick little baby she was early in her young life. She's actually in the 95% for weight and the 75% for height which is quite a miracle considering everything that went wrong with her health early on. Her immunity issues continued for many months before stabilizing around her 1st birthday. Despite being told she may not catch up with her peers in milestones, etc -- she has in fact, met them all. :)
Savannah is currently having dental issues that will require minor dental surgery to correct. I am not certain if her current problems are related to her former illness or not.
I really just wanted to touch base with you though. I am stunned how many parts of your story sound like my own.
I wish your sweet baby the best of health!
Christie
my e-mail address is wayneandchristie@hotmail.com if you'd like to talk more about our children and their health.