Doing well...

It's been awhile since we updated the blog and we wanted to update you on our little Micah. It's hard to believe that he was only 8 weeks old when all this started. Micah will be 7 months old this Saturday. He is growing and starting to meet his developmental milestones. Micah is developing such a cute personality. He is currently drinking Pregestimil milk and is now taking stage 1 baby foods which he cannot get enough of. Our other son Josiah has been such a good big brother to Micah. We just love our sons so much and things are now just getting "back to normal" which equals a less stressful life.

Sink or Swim

On the 3rd of February Micah had his follow up doctor visit with his GI doctor. The feeding tube that went into his nose was removed and he was placed on strict bottle feeds. Our doctor told us that it would be sick or swim. Either he would do well drinking strictly from the bottle or he would need his tube put back in. We thank God for how awesome Micah has done. He has had no trouble drinking from the bottle and he has been putting on weight. Micah continues to do well and he has even been on Pregestimil a milk that requires that his gut works harder to break down the milk. We are thoroughly enjoying him at home with a relatively normal life, although we are still very protective and cautious with him. His big brother absolutely loves him and always wants to watch tv and play with him. Thank you again for all your thoughts and prayers and for being with us during what was a very difficult time. Your support and concern meant a lot to our family.

Doing well...

Micah continues to progress very nicely. He had an appointment this week with his GI doctor and had a good report. Micah is now taking Neocate milk by mouth at 9am, 12pm, 3pm, 6pm, and 9pm. We just started feeding him by mouth with this schedule and so far he averages about 25mL per feeding. He is still receiving tube feeds via his nasal jejnum tube (which he had replaced this past Tuesday). Except his tube feeding times are from 6pm until 10am. This feeding schedule is supposed to stimulate his hunger drive and encourage him to eat more by mouth. We just love having him home and are excited that he is improving so nicely. Micah does still have a way to go before he is back to "normal." Josiah loves Micah at home and has been such a great big brother. And I just love having my family back home.

A Happy New Year

So far Micah has been home five days now and he is doing well. He is still receiving IV TPN but we are in the process of weaning it off and we are also increasing his nasal jejunum tube feeds everyday. So far he has been able to tolerate the increases of his tube feeds (Neocate Milk) which are currently up to 30mL/hour. His stools are looking normal again. We are all happy to be home. Josiah just loves his little brother. It has been a bit of an adjustment getting a schedule set up to give Micah his medications, start his IV TPN (which he gets at night for 12 hours a day) and his tube feeds which run 24 hours a day. Micah has a follow up apointment with his GI doctor this Tuesday. We are over the major hurdles but we still have a way to go. It has been a great new year so far and we are excited to see what the new year will bring. We wish and pray that you all have a Happy New Year.